Raising Awareness for Sickle Cell Disease in September

Peace to the Gods & Earths! September is Sickle Cell Awareness Month, dedicated to educating the ourselves and others about Sickle Cell Disease (SCD), a genetic condition that alters the shape of red blood cells from round to crescent-shaped, obstructing blood flow and leading to pain, infections, and various health issues. Approximately 1 in 365 of our babies are born with SCD, which is primarily caused by a mutation in the HBB gene responsible for producing beta-globin, a component of hemoglobin that transports oxygen in the body. Individuals with one normal and one mutated HBB gene have sickle cell trait but typically do not show symptoms.

Sickle cells have a lifespan of only 10 to 20 days compared to the typical 120 days of healthy red blood cells, resulting in anemia due to the body's inability to keep up with the rapid cell breakdown. The sickled cells can clump together, leading to blockages in small blood vessels, causing pain episodes known as sickle cell crises and heightening the risk of complications like organ damage and infections. Symptoms may include swelling in the hands and feet, delayed growth in children and teens, vision problems, and frequent infections due to poor spleen function. Serious complications can also arise, such as acute chest syndrome, stroke, and leg ulcers linked to poor circulation.

To effectively manage SCD, various holistic practices can be helpful. Gentle exercises, stress management techniques like meditation and yoga, and the application of warmth through baths or heating pads can alleviate pain. Prioritizing quality sleep aids the healing process, and aromatherapy with relaxing scents like lavender can contribute to stress reduction. Regular massages may ease muscle tension, and individuals are advised to avoid extreme temperatures to prevent symptom exacerbation. Finally, maintaining regular check-ups with healthcare providers is crucial for managing the disease and identifying complications early. Together, these holistic approaches can significantly enhance the well-being of those living with sickle cell disease.

Source: Centers for Disease Control and Prevention. (n.d.). Data and statistics on Sickle Cell Disease. Centers for Disease Control and Prevention. https://www.cdc.gov/sickle-cell/data/index). 

By: Yaa Majesty Earth